Raining like cats and dogs

It was pouring out side today. I took the kids to school this morning and by the time I got home every bit I had on was wet. Of course I was getting looks as I took the kids to school no umbrella, I hate the bloody things and of course my signature my capri pants and my clogs.
The best of it today the rain didn't seem to bother Finnian that much. We didn't see any seizures but that does not mean he wasn't having any.
I also have a new job part of my job description of being a Mammy to a special needs child. I now can compound prevacid.Our Finnian has been having a bit of a problem with the beeds in the prevacid not moving out of his stomach so the doc wanted me to get compunded prevacid but the pharmacy said it was too unstable to compound a months worth. So called the GI and got told how to compound it myself. So now it will be compunded twice daily. Whats and extra few steps in giving meds as long as it works.
We go to see the urologist with Finnian tomorrow to get his water works and pipes checked out. He has been having a problem he either doesn't pee or else he is flooding the place out. I know its going to come back neruological in nature but you never know.

Acceptance

Acceptance is the biggest Disability not the disability that my child has.

So from now on you chose to ignore that our Finnian is a huge part of our lives we are going to ignore you.

I just don't understand

Growing up there was only my brother and me for the longest time. Times were tough but we got by. The one thing we were always treated as equals. If my brother got something I got something. When it came to clothes shopping the same was spent on each of us. Years later my little sister arrived but things didn't change. She didn't get any special treatment ftom my parents just because she was the baby. We spoiled her more than my parents did. Even to this day my parents treat us all as equals even though we are all sooooooooo different. Even now if my parents do for one of us they find ways to do the same for the others.
I know a family that has 2 boys. The oldest lad is grand quiet lad very easy going but the other one thats a different story. He is the total oposite of number 1 and he is treated like a God. He only gets the best of everything and # 1 just gets what ever is the cheapest even if it doesn't fit right who cares he got something. You kind of wonder what goes on in their heads when they do this. They don't see what they are doing.
I have 3 kids and I try my best to treat them all the same even though I know Finnian does take up alot of their precious time. But sometimes a small simple jesture means the world to them and it makes them feel very improtant.

We went to the Gardens today

Finnian and the caterpillar

Eoghan in his woodland chair

Maura in her woodland chair

Finnian and the caterpillar again

Finnian and the ladybug

Big butterfly

Eoghan in the bee's head

My 3 caterpillars with the beautiful butterfly in the background

My 3 kiddo's

Eoghan and the frog

Eoghan and Maura in the conservatory

We went to the gardens today and we had a great time. It never fails with my camera. Either I forget to put the card back in it or my batteries die. Well they did die the batteries and I didn't have any extra with me. It was a pity because we had gone to see the Orchids. It was very crowded in the conservatory and I am not one for crowds when I have the kids in tow. So with the batteries dead in the camera and the crowds we left. The security guard felt bad for us but I told him not to worry we would be back as we have a membership to the gardens and we can go on another day or else we will go there first and then walk around the gardens. It was funny a guy went up to the security and asked" why is she allowed to bring in her stroller?" The security guard just looked and replied" I see a young boy in a wheelchair there is a difference" I felt like running over and hugging the guard. Most people think I have a fancy stroller oh how I wish.

The kids were tired after our day out and both Eoghan and Maura were in bed by 8:30 on a Saturday night. We will have to do this more often. Yeah my side kick is hanging out on the couch having a great conservation with his sock which is now all slobbered on. Oh well laundry tomorrow morning.

What happened to the nice spring weather

Its now only 32 degrees in the Bronx to day and they say it only feels like 22 outside with the wind chill. On the upside it is sunny. Oh mister Sun we do love you.
I now have to go digging out the winter woolies again. I know you don't change a clout till May is out. But the weather had been really nice so I packed away heavy things and pulled out the spring/summer stuff. I know I'm bad
We were thinking of going to the botanical Gardens today but it might be just a little nippy. Ah well we will just bundle up and go.

Friday March 26th is Epilepsy Awareness Day

As a parent to a child with Epilepsy this is a day for everyone to show their support that they know and are aware about Epilepsy.
Purple is the Epilepsy Awareness colour. So even if its only a purple pony tail holder, tee shirt, or even socks please wear it tomorrow for my Finnian, for his friends and for anyone you know be it a baby, child, teen or adult how suffers form Epilepsy.

So remember to wear purple on Friday March 26th to support Epilepsy Awareness Day

No news is good news

With the changes in the weather our Finnian has had his ups and downs. THe usual laughing one minute and crying the next. But we are so used of it now we don't even bat an eye at it any more.
Today we went to see Angela about his diet and our lad has lost almost 3 lbs. For Finnian thats alot of weight. But then we have to figure he had been sick before the surgery, then when in the hospital after the surgery and he has had a few bouts of the pukes sice he has come home. So we got to see Dr.K and since Finnian doesn't break down the prevacid he gave us a script to see if the pharmacy can compound it down in to a liquid. Well the pharmacy is working on it.
Then we went to see the neuro doc. nothing has changed as far as his meds they don't want to rock the boat and reduce his Keppra down right now after the surgery so we have to go back in a month and we will see what happens then.
So thats the news for today

A yucky day

Today started very foggy and overcast. Not good weather for our Finnian. He stayed home because I just knew it would be a rough one. Well all he did today was sleep, whine and cry. The only time he was happy was when I was walking with him. His tummy was very gassy so he had to be vented a lot. The smell of sour formula was enough to make my belly churn.
In a way the weather reflected my mood today. It was one year ago I turned on the computer and was checking my emails and there was one from Leslie. What was in the mail was not what I expected. Her sweet little girl didn't wake up. She was so much like my Finnian. So today is her first Angel Anniversary.

An Angel that will never be forgotten

Dear Jordan,
It broke our hearts when we heard that you had gotten your Angel Wings. At least now you are free to run,laugh and play.
We will send up some red balloons to honor your Angel Anniversary.
You are a special Angel that will never been forgotten.
Love the Cats in the Bronx

P.S. If its possible do you think you can send a butterfly to your Mammy today? I think she would like that.

We knew the weather was changing

This morning we knew the weather man wasn't telling tall tales about the change in the weather. We woke up to here Finnian puking. So we figured it would be a yucky day for him but it wasn't. He went to school all dressed up as it was picture day and he had a pretty good day. They took a few pictures of him as he had his tounge sticking out so we will just have to wait and see what was the best one.
We have had some thunder and lightening but knock on wood we haven't seen anything other than the normal seizures we see on a daily bases. Maybe the puking this morning it got everything out of his system for the day who knows.
We will just have to see what kind of a day he will have tomorrow

Sunday

Sunday was a beautiful day. The weather was gorgeous. We went to my brothers house to watch the parade. It was funny I always forget to pack something so I forgot to pack wipes. Not to worry thee is a CVS right near my brothers but it is on the parade path. I tried to ask people to move so I could get into the store but you would thing I asked them for their last dollar. So in the end I got a Policeman and he shifted the people out of the way so I could get into the store.
So I got the wipes, a new toy as we had lost his chewy toy on the way up there and of course my Cadbury carmel eggs we also picked up a pair of sun glasses for Finnian. He was doing his usual eye rolling and was getting a few odd looks.
On our way back we stopped just off the main street so Finnian could take in the sounds of the parade he loves the bag pipes and drums. It was funny one lady asked " how do you get him to sit quietly in his stroller?" You know I don't think about it anymore and I just said " My son is disabled and cannot walk" I felt bad for the lady as she stood there totally gob smacked not the answer she expected. But hey thats our life.
When we got back to my brothers house my sister and her other half had gotten there and they had their new puppy with them. Talk about exceitment Maura was over the moon. Nanny and Maura decided they would walk up to the store and you would never guess what they found yup Finny's chewy toy so they brought it back.
All in all we had a great day with great weather.

sleepless night

I was very tired so Joe said he would stay up and watch Finnian. He is sleeping much better but you just have to reposition him as he cannot do it on his own. I was very excited I was going to get another full night sleep. Alas it didn't happen. Finnian decided he was going to have a few little spells of night time siezures. So Daddy panicked and woke me up.
was watching him and decide to get the camera so we could video the episodes and of course he has another one but as usual the card wasn't inthe camera. It was still in the printer so I grab the card and popped it in and of course the seizure was over. I have been sitting waiting and nothing . It never fails. We have never gotten these on an EEG we have tired. So they cannot say for sure they are "real" seizures. But I have never seen a child start out of the blue in a full sleep start crying but its not a real cry its like one of terror but its not a nightmare it just stops abruptly. It only lasts a max of 2 minutes.
We have had a good run with out these I havent seen one of these in about 3 mths. His last bad seizure was in the end of January.So we just have to really watch him for the next few days as we usually see these little night time spells before a big one. We see little ones daily but they aren't anything out of the norm. When he had the surgery we saw an increase the day he was discharged but when we got home I gave him a little bit of klonopin and it knocked thoes buggers out.
Later today we are going to the St. Patricks Day parade in Pearl River.

Happy Birthday Maura

Today is our Maurs birthday. She is 7 years old today. Wow where has the time gone.

Its Friday

Finnian had a great day at school yesterday and today its wasn't as good. He had PT and was not happy. I cannot blame him his hip still hurts and his leg is stiff from him not being able to move it. He is doing much better with his pain meds he now just gets it every 12 hours and we are hoping to wean him on to motrin starting over the weekend. Fingers crossed that it won't upset his tummy. He has never had motrin or advil before. Its not something I ever have in the house if at all possible as I am very allergic to it. Even if I spill the liquid on my skin I come up in a big red welt and if I ingest it I go into anaphalic shock. Once was enough for that to happen. So I guess I will have to wear a mask while I crush the pills so I won't inhale any of it.
Tomorrow my little girl will turn 7 so now she will be a big girl or so she thinks. We will be celebrating her birthday at my brothers as we go to the St.Patricks Day parade by his house almost every year since he moved up there.
The weather has been very good and it shows with Finnian. He is a bit like myself we love the cold weather and we love the weather this time of the year as long as its not raining. Its a bit of a bummer the rain is supposed to be coming out way on Sunday night. We have really enjoyed the nice taste of good weather. Even the tee shirts and the capri pants got pulled out of the closet.
Have a nice weekend

I don't know what to do with myself

Yup I have the house all to myself today. Finnian went back to school today, just 2 weeks after his surgery. Well his nurse didn't want him to miss out on school pictures so she took him to school. Next week they will be having the graduation pictures. Yes my little lad is graduating for pre-school. He will be starting kindergarten in September.
So far today I have burned my toast not once but three times. Burned my fingers taking the toast out. Took a big gulp out of my coffee only to find out I hadn't put any milk in it. Yucky.
Did some cleaning up and putting away everything and I just looked at the clock cannot believe where the time has gone today.
As usual everything is only half done but there is always tomorrow to catch up

An invitation and not knowing what to do

We got an invitation to a family function well I should say Joe, #1 and me got invited. #2 and #3 didn't. I guess they have an age limit of 10 years or older since #1 is 10 years old. Our little problem is who do we get to look after #3? #2 is not a problem its easy to get a babysitter for her and #1 but our Finnian now thats a problem. We really need to get a nurse to watch him. I cannot blame anyone for not wanting to look after him. I know myself he can put the heart cross ways in you when he has seizures.
So now I have to see well I should say figure out if going to the function and giving a nice cash gift and paying a babysitter and a nurse worth it to feel like we are a normal family? Or should I just say no we cannot go?
I don't know yet too much is going through my head.

Well we got the answer

From our low vision exam the doctor has determined that Finnian is legally blind and non light responsive. Its funny when I read it on the report a wave of relief seemed to come over me. We now can work on teaching him how to use his other senses to see. I know it might sound crazy but when one of our senses don't work the others take over in teaching our brain how to process what we hear,smell,taste and touch.

The papers have been sent off for him to be registered with the Commission of the Blind and the Visually Impaired.At least when we get his registeration back we will be able to sign him up for the disability bus pass. No its not free he will get a reduced rate on the city buses and subways.

Hopefully he will get services in school now because he is now legally blind non light receptive.

Happy Saint Patrick's Day

Today is they day that everyone is Irish.
So while you are out celebrating just be careful and don't indulge in too much of the good stuff.

Happy Saint Patrick's Day

Do you know what anophthalmia is?

Its a rare condition that affects about 1 in 100,000 children. It is where the eyes do not form in the eye sockets.
Baby Jacob Nowak was born with out his eyes and optic nerves. His family now have to travel to Germany from Ireland to get the right treatment for their beautiful little boy. He has to have eye socket extenders and prosthetic eyes fitted in place to prevent his face from gradually collapsing in on its self.
The Irish HSE does not provide funding to Jacob for his treatments overseas. So the family have started to fundraise to cover the costs of his treatments.
To learn more about Jacob and his condition you can visit his web page

www.babyjacob.ie

Eye doctor visit today

Well going to the eye doctor is usually an experience but add on top of it withdrawal from pain meds. Not a great combo. He screamed through out the whole exam. The doctor has not been able to get a good look at the back of his eyes for a while so yup it means he needs to get them checked under anaesthesia. So they are going to arrange that he gets an ERG done at the same time.We have had problems of his eyes moving while the ERG is been done and so they get readings but not true readings.
The whole ERG test is so he can stay on Sabril. Do you know if your doctor does not submit the eye paper work they (FDA) will wean your child off the medication. They don't give 2 hoots if its working on keeping you child seizure free they just want to prove the side effects. Well our Finnian has been on Sabril since December of '05 as well as a whole crap load of other seizure meds and his retina's are fine. So now in order for my son to keep getting Sabril he has to go under anaesthesia every 3 months just to have the ERG done. The only way we can get around this 3 mths testing is if he is non responsive to light. We have questioned his response to light for a while now he doesn't respond to visual stimulation much any more. Finnian's vision has always been questionable due to the occipital damage on the right and now the left occiptal is a a seizure hot spot. So it looks like his right field of vision is basically gone now too.
So it looks like Finnian's vision diagnoses will be changing from legally blind visually impaired to non light recptive totally blind.

Here are some pictures of Finnian

His scar is healing very nice

Here he is on his tummy in his brace

Here is another picture of his brace

Boppy pillow to the rescue for sitting on. His legs are supported and his little butt cheeks fit nicely in the hole in the center.

No more pictures Mom

See now you can see my little eye really good

Here he is the new cousin

Fionn William Carroon

Big sisters Aobha and Fodhla watch while Fionn sleeps

Oh what a Sunday

I finally went to bed this morning at 4.30am only to have to get up at 7;15 again. I guess I cannot complain at least I got some sleep. Finnian has been very cranky last night and today. Cannot say if its the weather we had some thunder and lightning. Or if it is a side effect of the pain meds he is on along with the antibiotic.
He kept down his first feed but tossed the second one and screamed during the whole projectile vomit. I guess his reflux is bothering him. So we decided to give him ginger ale flattened and warmed. Never before has he tossed ginger ale but today was a first it came flying out his nose and mouth it looked like someone had jumped on his belly and everything came out.
I have to put in a call to his GI doc tomorrow and see what his take is on the vomiting. He has been a little miserable off and on for a few days now.
His incision looks really great and he is even wanting to roll over on his left side and suck his thumb. We will see how he is doing he might go to school on Thursday. Well they are taking the graduation pictures and I don't want him to miss out on them but if we have to, we have to.
The other two are off from school tomorrow a teacher's conference so they are very happy.

Yucky saturday

Well today started very early as Finnian was up after 1am. He was very cranky and just couldn't get comfortable. The rain was coming down and the wind was howling. I finally got him to slep at about 3:30 am. Then Eoghan and Joe were up by 5:30am so there was no point in going back to bed. At about 6am Eoghan laid down beside Finnian and next thing he was screaming. Eoghan must have knocked against Finny's leg. I finally got him back to sleep.
All day Finnian has mostly slept he will whin and you just reposition him and he goes right back to sleep. Because it was such a yucky day we were not going out so everyone got to stay in their jammies. It was such a cold ,wet damp, windy day. So I don't blame Finny for sleeping through it. I just hope he will stay asleep tonight. i sure do need my beauty sleep.
This afternoon while Finnian was being fed while he was sleeping thanks to his g-tube he gives the little tell taale cough and next thing the whole feed comes flying out his nose and mouth. He wakes up for about 15 mins and goes back to sleep as soon as he is all cleaned up. Every time I start a feed now he starts coughing. So instead I give him some ginger ale and so far he has kept it down.
I hate this rainy stormy weather well I hate what it does to Finny.

The low vision exam

Well we started off bright and early this morning to go down to the city. We took the express bus yeah it did cost us $5.50 each but is well worth it. Normally I would just put Finnian in his Maclaren special needs buggy and carry him up and down the stairs but because of his hip he is in his big chair and there was no way I was about to try and carry it up and down subway stairs. The bus came and the driver got out to get Finnian on the lift well the lift wouldn't go up so she called it in and stayed there did not move until someone came out to see what was wrong with the lift.I was shocked. Normally they would just say wait for the next bus but she called it in and got it fixed. We got down there a little late but we got there.
So the usual go over his history any new changes in meds etc. Of curse it was raining and Finnian wasn't in any mood to have his eyes checked out. He did get to see his contacts when he finally opened his eyes up.With all the light testing he did Finnian only had one response to light but at the same time we couldn't really say if it was to the light he responded. I do know with the weather ,the rain, He wouldn't have much response as the rain effects his seizure activity and we know he would have a lower response if any at all. So the docotr is writing him up as non light responsive. It basically means he is blind. Is it a shock to get that diagnoses? No its not its something we have always know that eventually he would probably get the "blind" diagnoses.
I know you wonder why he wears contact lenses even though he cannot see. The reason is because of the catracts he doesn't have his natural lens and the lens protects the inside of his eye. The doctor is also going to register him with the Commision of the Blind and the Visually Impaired.

The latest news on the hip

Well today we went and saw Amber she removed the dressings on his hip and leg. They look very good. We asked when could he go back to school and what restricitons would he have. Also could he have a bath? that was the main one. She got in touch with the doc and we found out he can do some therapy with out his brace on and he also can have a bath. Which is great because the wig of curls really needs a good scrubbing. The steri strips on his leg will come off and we got told what to watch out for just incase. We had to get a bit of an adjustment done to his brace as it was kind of digging into the back of his leg. Mind you he got fitted for the brace before the surgery and it was perfect but when they moved, shifted and put everything back the way it allways should have been it was a bit on the long side. John came in and took care of it and Finnian was a happier camper.
So we headed over to the peds office as he still has his stubborn hospital cough. We have been giving him breathing treatments like we normally would but this time it wasn't shifing. So the doc could hear some crackels in the upper lobe of his right lung and to be on the safe side he gave him an antibotic as his body had been through alot in a week.
So tomorrow we go and get his low vision exam for school and we will see if he will be told he is totally blind or if he can be diagnosed as visually impaired legally blind.
Well we will find out tomorrow

Happy belated Birthday

To a sweet little girl who shares my birthday.

Happy 1st birthday Lauren.

There is a new arrival

Congrats to Claire and John on the arrival of their new baby boy Fionn. He joins big sisters Aobha and Fodhla.

He arrived on March 3 so he shares his birthday with my big boy Eoghan.

Welcome to the family Fionn

the latest news

Well tomorrow we go to see the doctor and get Finny's leg/hip checked out. We will see how everything is going. He still has his hospital cough so tomorrow we will take him to the peds and see if he needs more than neb treatments. I hate to think that we will have to shove more meds in to him.
As far as pain managment he is now down to getting the good stuff every 6 hours. The last thing I need is for him to get hooked on pain meds too.
We went out today and we had a job to get his pants up over his bum. But because he was sitting down no one could see that he was showing his bum off. I think I will invest in some more leggings but in more boy colours. Or may be I will try some baby legs on him.
He is getting back to himself as he was pulling hair today. His poor nurse he nearly pulled her curls off and he laughed the whole time.
Friday we go and get a low vision evulation done on him for school. I hope he will respond and I must put his contact lenses in. He has not had then in for over a week as I figured the surgery was enough stress on him without me poking at his eyes.
Will let you know how tomorrow goes.

Happy Birthday Dad/Grandad

Sorry Dad I haven't updated my blog but

Happy Birthday.

finally unwinding

Well when we went in for his surgery we were supposed to be home by Friday but when you have a child with medical issues that sometimes changes, well like this time. The surgery went great and even though the epidural didn't work the morphine did and his pain was well controlled. The problem he had was after surgery they noticed his potassium was low that was the reason we got sent to the ICU for the night. On Wednesday they gave him some potassium and he seemed to be a bit better but of course his levels dropped again.So they gave him more and they had to give him more on Thursday and Friday. Saturday finally he was holding low normal levels and thankfully this morning his levels were normal. The other issue he was having was he wasn't peeing on his own and had a cath in. So when ortho came by and said his potassium levels were good and he could go home as long as he peed on his own. So we had to wait. and we waited but he finally voided a little. We nearly had a little party when he went pee.
After we got home i gave him his meds and he was having alot of little seizures which I had expected due to the stress on his body so we took care of them with a little help from a bit of klonopin. Then he got his pain meds and he had a great nap. He woke up very cranky and couldn't get in to a comfy position so I took him in on our bed and laid him on top of me and he went back to sleep. So when I had to get up I felt really bad but I was able to make a makeshift mommy out of the pillows. He is snoring so I know he is finally catching up on his sleep. You know its not easy to rest when you are in the hospital when they are coming in checking your vitals and poking you and taking blood.
He goes back to the ortho doc later this week and we will see what he thinks of our Finnian. You know it was a hard surgery on him but you can see the difference on his leg already. So now we wait and hopefully it was the right thing we did for him.

We are finally home

Well we are finally home. We are both tired and Finnian is still in some pain.Will update later after we unwind from all of the hospital stress

Happy Birthday

Surgery update

Legs are marked and signed before surgery

See how long he is

Having a nap before surgery

ICU after surgery

In ICU

Kind of awake in his room

See no casts but still has IV's in

I have never seen his left leg look so plump

He just wants to be left alone

Eoghan and Maura came to see Finnian in the hospital

Leave me alone " I hurt"

Well we were down at the hospital for 10 am and it was about 1:15 when we took him back in to the OR. I got to stay with him until he was asleep.I got to see them start his IV's and when they gave him the good stuff I said OK he is all your's now he is asleep.

Then the waiting began and the doctor came out after 4:30 and said that it had gone well and they had to use small hard wear on him. He didn't have to get blood and they had gotten the epidural and hopefully it would help with his pain managment.

I got back to see him and the poor little lad he wasn't feeling too good. They decided to pull the epi as it didn't seem to be working on him and they hooked him up on to a morphine pump. Since he was on the morphine they shipped him up to the ICU to be watched for the night. So today we got sent to a regular room. He still dosn't want anyone touching his leg not that I can blame him. They also took the urine cath off of him so it was fun changing his nappy. Its a 2 person job right now.

Tomorrow they are going to wean him off the morphie and try him on regular pain meds. they only did his left side so he will have to go back at another time and get the right hip done. They are a little worried as he is sleeping a lot. I told them that its normal its his way of dealing with all the sounds of the hospital and he would perk up is he was disconnected form everything and you tell him he's is going home.
So we will see how tomorrow goes with the wean of meds.

Eoghan relaxing watching TV in Finnian's room

Happy Birthday Eoghan

My big boy Eoghan will be 10 on March 3rd. Happy Birthday big boy.
I am sorry we won't be at home to help you celebrate again for your brithday your brother is in the hospital.
Enjoy your party at school.
Love Mammy and Finnian

Happy Birthday

Happy Birthday Carolien.
Hope you have a nice day.
The Cats in the Bronx

Don't you just love it when people say..................

I think I have heard it all, Did you sue?, well if you did this it would help, you need a house, Oh I don't know how you do it,
Well now first things first No I did not sue anyone over Finnians issues. Well I don't think my uterus has any insurance.
We have tried a lot of things with him and they only treat his isssues they don't cure it. If I could afford a house I would have one but only have one paycheque coming in and all the meds we go through in a month I have squat for anything else.
The only reason I can do it is because I have accepted our Finnian for who he is and I love him for him. My other 2 children are really great with him even though he takes up a lot of Mommy time. We have been very honest with them about his issues and I think thats very important.
I find it hard that people just look and pass judgment. Don't you think if I could rewind time and figure out what caused his issues I would change it. No one person ever asks for a child like mine. The one thing we can do is love him, care for him, keep him happy but at the same time keep in line like as if he was a normal 5 year old. You cannot dwell on the would have , could have, should have because it like a virus and it will eat you up. All we can do is look toward tomorrow and hope its a better day.

Well we got the call

Well we just got the call that Finnian has to be at the hospital at 10 am sharp. He can have no liquid afer 8 am but he can have his meds but have them before 8 am. The surgery will take about 4 hours.
Finnian got the 24 hour bug that Maura had and now Joe has it too. I am usually lucky enough that i don't get it when every one else has it, I usually get sick all on my own. So I hope it stays that way. Its a weird bug you can projectile vomit for 24 hours and not have a tempature. Poor Finnian the spasms on his tummy were terrible and he had the dry heaves. Thankfully we had no major seizures even with him tossing his meds. Today he is doing good and keeping everything down.
So now the count down begins to the final hours before the surgery. We will see how the brace goes after the surgery. I find it hard that he will not be in casts. I think thats my biggest worry that I will hurt him. Oh well we will just have to wait and see