Wednesday, May 30, 2012

My summer cabana
Long legs
Dirty piggies
Just look at the dirt
Finnian and Daddy

Monday, May 14, 2012

Okay lets try again

http://www.facebook.com/FCMichigan?v=app_248518978578050&app_data=entry_id%3D5167779 You might have to copy and paste the link

Help Finnian get a trike

I hope this works but click on the link, then click like then go to Finnian's picture and click in the box that says "vote". We are trying to get him a trike. There is no way we can afford to buy a special needs trike for him because soup to nuts its like $1000. So please take a minute and vote for our Finnian. Thanks

Update

Well he went in the hospital last Monday and got all hooked up and his head all wrapped up. He was in until Wednesday and the results are he is having spikes from his left occipital lobe and it shows us the reason why his vision has been going again.You see Finnian is blind on the left side of both eyes from the stroke he had in-utero. The other area he is having spikes is in the lower left posterior lobe and that is the area that controls movement. The good thing is what looks like myoclonic seizures are not seizures but his movement disorder. We have room to go up on the medication he takes for his movement so I guess we will be upping that one. They took him down on his Keto diet to a 3:1 ratio and reduced his protein. So now we have to watch him for seizures because of the change. Saturday was not a great day. It was hard to watch him having the myoclonic jerks and they were lasting for up to 30mins. He was getting flustered as his hands kept jerking. He had a few rattles of these the shortest cluster lasting 10mins and the longest cluster lasting 30 mins. Before we would give him a rescue med for his "seizures" but since they are not seizures we have to ride the storm. Will be putting in a call to his movement disorder Doc on Monday.