Tuesday, October 9, 2012

I know , I know I have been slacking

The kids started back at school, Eoghan is in 7th grade and Maurs is in 4th grade and Finnian is supposed to be in 2nd grade but again this year we fought to keep him at home and a teacher comes in to the house 5 hours a week. Finnian even showed the teacher why its safer to be in the home program oh yes did our boy have a doozy of a seizure I think it was the first full week of classes. It started out as a myoclonic and just kept going. We used his VNS first nothing happened so then we gave him Klonopin and that didn't stop it so we ended up give him diastat and waited. I had even gotten the "go bag" as I thought it would end up with a trip to the ER but we were lucky again and got to stay at home. Finnian had his hamstrings released and also his achilles tendons released so now boy wonder has blue casts and knee braces on.
He also got his new wheelchair. Oh wow did that take a long time but he finally has it. I have added some bling to the head rest and the chest harness. Yup some sugar skulls fabric. Making more covers so we can change it up a little. His chair is a cool "toxic green".
Oh yeah I fried the computer again. No I didn't spill anything on it the hard drive decided it didn't like me anymore and just quit on my. Thankfully my little sister and her other half came to the rescue again ( remember last year the power switch went in the computer) well they figured out it was my hard drive and got a new one and put it in for me. Rick is the best he was able to get nearly all my info off the old hard drive. I must invest in external back up so if and when something happens I will be able to get all my data back easy. October was a pretty blank month for appointments but slowly they have started to pile up on the calendar. Eoghan is having his scope with biopsy done to check out his Eosinophilic disorder out the end of the month and of course boy wonder Finnian has follow up appointments and he is also getting his ERG done on his eyes. Oh well thats it for now