Sunday, October 11, 2009

We are home

Well we got home yesterday evening and the results are they didn't get the episodes he was having at home but they did get 2 seizures when he was sleeping. This we haven't seen in a while. The seizures did not have any physical involvment so no thrashing or moving or twitches. He did something that we have seen him do at home where his eyes will cross and then dart over to the left and basically will stay there and then they start bobing up and down. So for now there are no changes in his meds.
Because he was very hypersinsitive to the touch during his seizure he had at home and the only other time we had see that was when he ended up with aspitarion pneumonia they did a chest x-ray there was good news there it was clear. They did blood work on him too and we had to cath him because he had not peed they also wanted a urine sample. Boy when the nurse catherized him she got a load of pee out of him but then again he had not peed in over 6 hours. We usually have this happen before he does one of his shout seizures but of course he didn't have one of thoes ones.
So now we are home with instructions that we are to video him when he has one of the crying spells and we have to hook him up on to the pulse ox to see what his heart rate and O2 rates are like during one of them. So now we wait.

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