Well Finnian met his teacher last night and what a good boy he was. He counted for her well I should say with her as she said the numbers. He was really engaged with her.
Then today was an off morning for him. He woke up long enough to have his bath and then went back to sleep until about 1:30. When he woke up he was a bit jumpy and we watched him as he had not peed in a long time even though he had gotten fed while he was asleep. We were really watching him and we noticed that his twitches were getting closer together. So by the time they hit the 5 min mark we were figuring out what would be the best med to give him and how much. Finnian is a little weird as for different seizures we give him different meds and different amounts. So we ended up giving him 5 mg of diastat and we waited. Guess what he did? He finally peed and boy did he go the seizure had stopped. So he got all nice again and we moved him out to the living room as his teacher was coming again. So he was all set up and his nurse said keep an eye on him until I rinse off his toy. She wasn't even in the kitchen when his alarm went off. Yup his heart rate had dropped to 46. We got it back up and all his nurse said thank God we only gave him 5mgs of diastat. We just have to be careful with the amount of rescue meds we give him now as it does seem to affect his heart rate or was it something that would have happened even if we didn't give him the diastat. Well later on he had 3 more low dips in his heart rate and it was way after the 4 hour life of the diastat.
His teacher was impressed with him as she was asking him if F was for Finnian and there he was signing yes for her. She was so happy that he at least recognises some letters. She was trying to get him to do soft and hard but he wasn't getting it so I asked him which one is nice and he picked the soft one. He did this a few times so we started to ask him which one was soft and he was getting it so that is something I will have to work on as well as his letters.
Roll on tomorrow I hope we won't have to use rescue meds
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