Well he got his walking papers from the hospital today and its great to be home. I have to follow up with all of his doctors and hopefully they will all be on the same page.
They gave him an enema in the hospital well even though he can go 2-3 times a day he never seems to empty his pipes out they probably thought that was the reason he was throwing up. But I can tell you its not the reason we have in the past cleaned him out and he will still have issues. For a little boy on a controlled diet he sure does put alot of crap out.
There are times you feel that his seizures are triggering other things in him but the EEG takes time to prove it well I should say show what we mean.
Look at his low O2 rate and the low heart rate. They say that his seizures are not causing the issue but then when you go to the specialists and they cannot find or see what would cause the issues it gets written up as a neuro issue. But then neuro cannot see anything they will tell you go to see the doctors.
Seizures are a vicious cycle that can disrupt any body function but you need proof to prove it. That is what we don't have the brain waves to show that yes it does cause the disruptions.
No comments:
Post a Comment