Get everyone loaded in and off we went to see the ENT. Got there and we were in the waiting room and the next thing Finny''s alarm was beeping up a storm. Bonnie got up and left the room with him. Just then the nurse called us as we were next and showed us in to a room. Thats when the crap hit the fan. Yup there was our Finny in a full blown seizure and his heart rate was over 200. So we just closed the door as we knew that there was no way he was going to come out of it on his own. So we went to put him on the little kiddy table that was in the room only to relize that we didn't have any pads to put on it so I just used my jacket. So we had to give him an up the butt (rectal diastat). When the doc came in he just looked and knew there was something up so we just said "Oh he just had a seizure" all he wanted to know if he should call down to the ER and let them know we were on the way. Both of us were like " Oh don't worry he's fine" but he really wasn't. SO he got his ears checked out and of course he has a little ear infection but its not something that would cause the seizures he has been having. So with a script for more ear drops we were ready to leave. Bonnie had taken Finny out and I was getting my book ready to make another appointment when I got asked if Finny was really ok. At that stage he was really starting to come out of it so I told him not to worry that we could handle it and we didn't need to go to the ER. SO we went off on out merry way with a script and a follow up appointment.
Popped by to see Danny as he is in the adult part of the hosptial to say hello and then we were on our way home. Finny slept and when we got home he woke up and was in the best of form.He was chatting up a storm and even chatted to Nanny on the phone. Even now he is in great form other than having the stinky smelly diastat poopy nappies.
Lesson learned today make sure that there are disposable pads in all bags including the stroller bag and to make sure we bring 2 diastats with us.
If we had not given him the diastat we would have ended up in the ER with him. Normally we don't give diastat much at all but when we see a certain type of seizure we now know that if we don't get the meds in to him right away it will turn serious really fast and that's not fair to Finnian. I guess I have gotten used to his "bad" seizures and thankfully I don't freak out any more but I have gotten to know the ones that have to be treated right away and the ones we can wait and see if they will stop on their own. Must call the doctors office tomorrow and get them to send me out a script for more Diastat so we can have it on hand. You know he has gotten 3 shots of the up the butt and also a few extra doses of Klonopin in the past week. It really hurts to know that I have to shove that crap in to him but I do because we have to stop some of them right away before it causes other issues.
Got a call this afternoon that they had to change the date for his surgery on his belly so now he will be having it in June.
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