Monday, April 19, 2010

Well the bubble burst

We have been have a good run with out too many seizures. He has a few after his surgery and we saw another one or two but today started out with seizures on the school bus. Yup his nurse's worst nightmare seizures on the bus.Thankfully they were at the school when it happened so she just grabbed him and took him straight inside. That was as 8:50am it lasted about 2 mins. The next one happened at 11:10am and lasted about 1.5 mins. The next one was as he was getting ready to leave school at 2:15 pm and lasted less than 2 mins. The last one he had was at 5:30pm and we gave him diastat as he was really starting to form a pattern. We have checked him out and cannot find anything wrong with him his ears look great so does his throat. The only thing I have to check is his sugars and I will also see if I can get a pee sample to bring to the doctors office just incase something will show up there.
We were just getting comfortable with the "bad" seizures showing up every 2 months but now he has had 4 in one day. The only difference is he doesn't make that awful shout so does that mean they are not as bad? I don't know and you know the doctor won't be able to say as we have never gotten one on an EEG. I think we will have to push forward and see a movement doctor and see what their take is on Finnian.
Oh well thats all for now

1 comment:

Anonymous said...

Hope the answer is simple and easy to resolve. Has he gained weight and needs more med? Barbara