Finally an update

You know we have had a lot going on with Finnian well we had basically a week of appointments for him. Eoghan also had a big appointment as well. So I will just start with Finny. On the 8th we went to see the doctor about the VNS for him. He is a good candidate for the surgery and it basically came down to "did we want him to go for it". Well you know it is a surgery but if it will help his seizures and his quality of life we are going for it. Don't have the date yet but it will be in the next few weeks. Tuesday we went to the ENT and he said he looked good but to watch his right ear and if he started showing signs of having an ear infection to just start back on the drops and come back in a few months. Well on Wednesday morning there was blood pouring out of his left ear yup his ear drum popped. We had to take Finny down to the hospital for an MRI so I explained the ear drum problem cause I wasn't sure if they would do the MRI but they did and when it was all over we went back to see the ENT and he couldn't believe that his left ear drum had popped so the next time Finny is having anything done under anesthesia he is going to put a new tube in his right ear as he doesn't want him popping another ear drum. Thursday we went to the school district for Finnian's IEP what a mess they are basically starting from scratch again this year since his kindergarten year was totally messed up as there were papers missing from his file important ones that with out them there was basically nothing we could do so he didn't go to kindergarten. We have to go back for another meeting to see what is going to happen well at least if they say he has to go to school I hope they put him into an English speaking class cause we aren't bilingual they way they think we are. Friday we went to see the movement disorder doctor for Finnian and at the same time Eoghan was having his GI scope with biopsy done to check out his autoimmune disorder. Well since I couldn't split myself Nanny came to the rescue and stayed with Eoghan so I could go to Finny's appointment. Well we know his Dystonia has gotten worse and knew his meds for it would have to be increased so it was a new doctor we saw and she gave him a good check up and agreed that his meds needed to be tweaked. So we came away with a new script for his meds and another appointment in October.

Eoghan did good but because of his weight and height he is now getting adult doses of anesthesia so he wasn't feeling the best as he was tired and his tummy was a bit upset.

Monday we have another appointment for Finnian and then hopefully we will get a break for a few weeks. Its just a follow up appointment with the Neuro to touch base after all the important ones we just had. Hopefully the MRI report will be there if not I guess we will have to go back.

Eoghan will be finished with Summer school on Friday he is doing really well he has a 91% average in his math in summer school. Then on Sunday he gets on a plane to Ireland. He is getting so excited about his trip with Nanny.