Merry Christmas
The Cataldo Family
Wednesday, December 24, 2008
Thursday, December 18, 2008
Finnian
Its been 1 year since we started the Keto diet with Finnian. We didn't get the out come we hoped for seizure free and no meds, but we are almost seizure free with meds on the diet. His quality of life has improved as his number, severity and duration of seizures has decreased.
What is the Keto diet? Well the diet consits high amounts of fats controlled amounts of proteins and carbohydrates. Finnian takes his concoction via g-tube and w just call it his formula. We still try and make him eat by mouth but he doesn't consume enough to take away one of his feeds.
Our formula is made up of RCF fromula soy based, micro-lipids, water and polycose powder. They say if your child can take the Ketogenic formula it is better but our Finnian has a problem with dairy products. So we use the other mixture.
He is due for another calorie increase due to his growth. Right now he is on 1160 calories a day you might not think it is a lot but the majority of it comes from the fats.
Do I agree with the diet? Yes I do one year ago I had an almost 3 year old that was just there now I have an almost 4 year old that can sit up on his own for almost 3 minutes. That was a huge achivement for him.
I hope we can keep him on this for a while so we can improve his quality of life.
What is the Keto diet? Well the diet consits high amounts of fats controlled amounts of proteins and carbohydrates. Finnian takes his concoction via g-tube and w just call it his formula. We still try and make him eat by mouth but he doesn't consume enough to take away one of his feeds.
Our formula is made up of RCF fromula soy based, micro-lipids, water and polycose powder. They say if your child can take the Ketogenic formula it is better but our Finnian has a problem with dairy products. So we use the other mixture.
He is due for another calorie increase due to his growth. Right now he is on 1160 calories a day you might not think it is a lot but the majority of it comes from the fats.
Do I agree with the diet? Yes I do one year ago I had an almost 3 year old that was just there now I have an almost 4 year old that can sit up on his own for almost 3 minutes. That was a huge achivement for him.
I hope we can keep him on this for a while so we can improve his quality of life.
Monday, December 15, 2008
Christmas Pictures
Well I had all planned to do the kids pictures last weekend but as always something was up. Finnian had been sick but thankfully no seizures. I am kind of afraid to say that_-- seizures. The increase in the meds seems to really agree with him. The only thing we notice is that he looses his speech when he gets sick. Oh well just something they have to figure out with him.
Maura was as sick as a dog on Friday night so off to the doctor we went on Saturday well she has basically the same thing that Finny had but without the strep throat. By Sunday she was on the mend so downstairs to the lobby to take our Christmas pictures at the Christmas tree.
Click on the picture link to the right and you can see my handy work.
Maura was as sick as a dog on Friday night so off to the doctor we went on Saturday well she has basically the same thing that Finny had but without the strep throat. By Sunday she was on the mend so downstairs to the lobby to take our Christmas pictures at the Christmas tree.
Click on the picture link to the right and you can see my handy work.
Friday, December 12, 2008
The Playlist
I know when you click on the blog the music plays but if you don't want to listen to Alison Krauss just scroll down and click on someting else.
There are a few songs on it that mean something to me, yeah I know you can all tell I grew up in the 80's but you should see how alive Finnian becomes when he hears some of these songs.
Please listen to "Scorn not his symplicity" I call this Finnian's song. I wish everyone could see him when I play it. It just shows that there is much more going on in his brain than we know. When he hears the first few note of music he taps his chest like he is saying this is my song.
There are a few songs on it that mean something to me, yeah I know you can all tell I grew up in the 80's but you should see how alive Finnian becomes when he hears some of these songs.
Please listen to "Scorn not his symplicity" I call this Finnian's song. I wish everyone could see him when I play it. It just shows that there is much more going on in his brain than we know. When he hears the first few note of music he taps his chest like he is saying this is my song.
Finnian's friends
As we go through our journey there are many more parents and children going through the same journey.
Finnian's friends are some of the people going through this journey too.
Please click on the link to the right and read about Jude and his journey and also read about Jordan and her journey.
When your children are driving you crazy and maybe your husband/wife, partner, in-laws/out-laws are just take a moment and read about Finnian and his friends and then you will see we don't take anything for granted. Sometimes the smallest things are huge achivements for our kids.
Sometimes we get thrown for a loop but the one thing we all have in common is the strength that we never knew we had, until Finnian, Jude and Jordan came in our lives.
Finnian's friends are some of the people going through this journey too.
Please click on the link to the right and read about Jude and his journey and also read about Jordan and her journey.
When your children are driving you crazy and maybe your husband/wife, partner, in-laws/out-laws are just take a moment and read about Finnian and his friends and then you will see we don't take anything for granted. Sometimes the smallest things are huge achivements for our kids.
Sometimes we get thrown for a loop but the one thing we all have in common is the strength that we never knew we had, until Finnian, Jude and Jordan came in our lives.
Dear Finnian
My sweet little boy, 4 years ago on Dec. 9th 2004 we were given shocking news. The news we were given was that God had chosen a different path in life for you to follow.He had made you special in a different way.
I was at the doctor's office on my own and I knew something wasn't right, they kept looking at your small sweet head. I found the courage to ask" What's wrong with his head?" The doctor said he saw something but he wanted to make a call and to come to see him in the office after the technician was finished taking all of the measurements. My little boy you were about 6lbs 10oz and about 19" long and yes you were a boy.
So in to the office I went to find out what was wrong. The doctor told me that your right ventricle in your brain was much larger than what it should be. He showed me what it looked like at 6mths and what it looked like now. I don't know where my confidence came from but I was going to do the best I could for you. " I said ok there is a problem so where do I go and who do I see?" "Do you know what happened?" He told me he couldn't say for sure but something had stopped the fluid from flowing out of your ventricle may be a bleed. He also had the name and phone number of a doctor he wanted me to go and see. I told him I would call as so as I had gotten home.
The hardest thing was how do I tell your Daddy that something was wrong. I sat for a while in the car thinking going over how I was going to break it to him never mind Daddy how would I tell Nanny and Granddad?
My dear Finnian I got through it and I made the phone call and our journey began.
To be honest its a journey no parent should make and its a journey no child should have to make. But life is a journey for learning and believe you me I now know more than I ever thought I would and I am still learning.
I was at the doctor's office on my own and I knew something wasn't right, they kept looking at your small sweet head. I found the courage to ask" What's wrong with his head?" The doctor said he saw something but he wanted to make a call and to come to see him in the office after the technician was finished taking all of the measurements. My little boy you were about 6lbs 10oz and about 19" long and yes you were a boy.
So in to the office I went to find out what was wrong. The doctor told me that your right ventricle in your brain was much larger than what it should be. He showed me what it looked like at 6mths and what it looked like now. I don't know where my confidence came from but I was going to do the best I could for you. " I said ok there is a problem so where do I go and who do I see?" "Do you know what happened?" He told me he couldn't say for sure but something had stopped the fluid from flowing out of your ventricle may be a bleed. He also had the name and phone number of a doctor he wanted me to go and see. I told him I would call as so as I had gotten home.
The hardest thing was how do I tell your Daddy that something was wrong. I sat for a while in the car thinking going over how I was going to break it to him never mind Daddy how would I tell Nanny and Granddad?
My dear Finnian I got through it and I made the phone call and our journey began.
To be honest its a journey no parent should make and its a journey no child should have to make. But life is a journey for learning and believe you me I now know more than I ever thought I would and I am still learning.
Thursday, December 4, 2008
Up date on our Finnian
Well our Finnian has been doing pretty good. His bad seizures are down to one every 3-4 weeks. Hopefully with the last increase in Keppra we hope 4-5 weeks but if not we know what to do.
We have an appointment on the 22nd of December with the Genetic doc. Well we have been playing phone tag with her so I decided just to make an appointment and sit accross the table from her and hear what she thinks that our Finnian might have. Blood tests I will do but if he needs anything else we will see.
Will up date on that appointment when it happens.
I hope to be getting the kids Christmas pictures done this weekend well we will see.
Thats it for now
We have an appointment on the 22nd of December with the Genetic doc. Well we have been playing phone tag with her so I decided just to make an appointment and sit accross the table from her and hear what she thinks that our Finnian might have. Blood tests I will do but if he needs anything else we will see.
Will up date on that appointment when it happens.
I hope to be getting the kids Christmas pictures done this weekend well we will see.
Thats it for now
Food Allergy tests finally done
Well our Eoghan had the last of his food allergy tests done today and the results are,
Clams, Oysters, Crab, Soybean,Buckwheat, Almonds, Peanut, Eggs, Dairy and the one that had the highest reaction was Peas. So Eoghan and myself will not be eating Beanie and Barney Peas or peas of any kind. I feel bad for him because now that we know what his triggers are we have to be careful. The best solution is total elimination of all allergic foods. So now I have to be very careful when buying any processes foods to make sure that there are none of the no-no foods in them.
The allergist said that Eoghan would benfit from a gluten free diet but we will wait and see what the GI doc has to say.
Well thats al for now
Clams, Oysters, Crab, Soybean,Buckwheat, Almonds, Peanut, Eggs, Dairy and the one that had the highest reaction was Peas. So Eoghan and myself will not be eating Beanie and Barney Peas or peas of any kind. I feel bad for him because now that we know what his triggers are we have to be careful. The best solution is total elimination of all allergic foods. So now I have to be very careful when buying any processes foods to make sure that there are none of the no-no foods in them.
The allergist said that Eoghan would benfit from a gluten free diet but we will wait and see what the GI doc has to say.
Well thats al for now
Tuesday, November 11, 2008
November News
Well since Maura got her glasses lets try to remember what has happened.
Eoghan woke up one morning screaming "my eye,My eye". Took him to the eye doctor and he had an abrasion on his cornea.He was fine again after a few days but is still on eye drops to protect his eye.
Then on the 30th of October he had his upper endoscopic to see hopefully what has been causing his tummy trouble. The doctor came out and said everything looked good but we would have to wait for the boipsy results. Well we got the results and it seems our Eoghan has Eosinophilic Esophagitis. I know, what it means is Eoghan has an autoimmune disorder that is caused by an allergic reaction to food. Now we have to go and get him tested for food allergies to see what has to be taken out of his diet,what can be limited in his daily diet and more over what his safe foods are.
Finnian had a bad seizure almost 3 weeks ago so we will be watching him again as he seems to have them every 21 to 25 days. Hopefully since his last increase in meds we can say good bye to them. Oh yeah Finnian has sat on his own now for over 2 minutes. check the pictures and you can see him.
Thats it for now
Eoghan woke up one morning screaming "my eye,My eye". Took him to the eye doctor and he had an abrasion on his cornea.He was fine again after a few days but is still on eye drops to protect his eye.
Then on the 30th of October he had his upper endoscopic to see hopefully what has been causing his tummy trouble. The doctor came out and said everything looked good but we would have to wait for the boipsy results. Well we got the results and it seems our Eoghan has Eosinophilic Esophagitis. I know, what it means is Eoghan has an autoimmune disorder that is caused by an allergic reaction to food. Now we have to go and get him tested for food allergies to see what has to be taken out of his diet,what can be limited in his daily diet and more over what his safe foods are.
Finnian had a bad seizure almost 3 weeks ago so we will be watching him again as he seems to have them every 21 to 25 days. Hopefully since his last increase in meds we can say good bye to them. Oh yeah Finnian has sat on his own now for over 2 minutes. check the pictures and you can see him.
Thats it for now
Monday, October 20, 2008
Saturday, October 4, 2008
Looking for pictures
Hello I know that most people have digital cameras if not regular pictures will do.
I am looking for pictures they can be school pictures, pictures that you took of the children, studio shots what ever.
Any pictures that come via the post will be scanned and returned to the sender.
If you only want to send pictures of the kids thats fine. But if you have a family picture that would be really great.Or even a picture of the kids with the grandparents.
My kids hear us talk of their cousins in Ireland and England. They saw some of their cousins while in Ireland this summer but not all.
I am making something like a family tree for them but I need pictures.
So anyone that is a Cosgrove,was a Cosgrove or any Cosgrove offspring please send me pictures.
I don't have many email adderss so if you could please pass the message along.
Thanks
Geraldine
I am looking for pictures they can be school pictures, pictures that you took of the children, studio shots what ever.
Any pictures that come via the post will be scanned and returned to the sender.
If you only want to send pictures of the kids thats fine. But if you have a family picture that would be really great.Or even a picture of the kids with the grandparents.
My kids hear us talk of their cousins in Ireland and England. They saw some of their cousins while in Ireland this summer but not all.
I am making something like a family tree for them but I need pictures.
So anyone that is a Cosgrove,was a Cosgrove or any Cosgrove offspring please send me pictures.
I don't have many email adderss so if you could please pass the message along.
Thanks
Geraldine
Late notice on New Baby
We just heard that congratulations are in order for
Marion and Richard Cooke
They welcomed a baby girl on June 21
Rachel Elizabeth
Congrats to Grace on becomming a big sister
Marion and Richard Cooke
They welcomed a baby girl on June 21
Rachel Elizabeth
Congrats to Grace on becomming a big sister
Friday, October 3, 2008
Eye Doctor
Well I had the two at the eye doctor today and our Maura needs glasses. She wanted to go as soon as we got out of the doctors office to get her new glasses. She wants pink ones I told her she will just have to wait and see what we can get in her size.Eoghan also has a new script so he will be getting new glasses too.
Our Finnian had a low vision exam done in August and they couldn't get any light response from his eyes. They are still hoping that once his seizures are under controll he might have vision. They still have him labeled legally blind visually impaired.
I will post pictures of the new glasses once they get them
Our Finnian had a low vision exam done in August and they couldn't get any light response from his eyes. They are still hoping that once his seizures are under controll he might have vision. They still have him labeled legally blind visually impaired.
I will post pictures of the new glasses once they get them
Wednesday, October 1, 2008
We are home
Well our lad gave them all a scare in the PICU on Sunday night. I went out for a for a few minutes and came back to 5-6nurses and 2 doctors working on our lad. They got a chest xray and discovered that he had dislodged his breathing tube they redid the tube and everything was fine again.
On Monday they discharged him from the PICU to the epliepsy unit they had to moniter him because they were afraid his seizures might come back once they took him off the IV seizure meds.Thankfully they didn't to be honest I have never seen his brain activity so calm.
Today October 1 we got out of the joint everyone said that I could take care of him at home his pneumonia is 98% gone so another 9 days of antibotics and breathing treatments and we just have to watch him for seizures.
Sorry if I scared people with the pictures of him hooked up to the breathing machine.I have added some more pictures of him in the hospital they aren't as scary.
Bye Ger and the Cats in the Bronx
On Monday they discharged him from the PICU to the epliepsy unit they had to moniter him because they were afraid his seizures might come back once they took him off the IV seizure meds.Thankfully they didn't to be honest I have never seen his brain activity so calm.
Today October 1 we got out of the joint everyone said that I could take care of him at home his pneumonia is 98% gone so another 9 days of antibotics and breathing treatments and we just have to watch him for seizures.
Sorry if I scared people with the pictures of him hooked up to the breathing machine.I have added some more pictures of him in the hospital they aren't as scary.
Bye Ger and the Cats in the Bronx
Sunday, September 28, 2008
Finnian is in PICU
Our lad Finnian went into seizure status on friday morning September 27th. We tries to stop the seizures at home but were unable to. We took him to the ER and they tried to stop them with Atavian but it didn't work. He had an X ray of his chest and a Cat Scan of his head. The X ray showed that the top lobe in his right lung had collapsed due to aspiration pneunomia. They addmitted him to the PEds Intensive Care unit where they had to put in a breathing tube.
They finally got the seizures to stop with IV meds he is also in IV meds for the pneumonia the tube is still in we hope to be home in a few days.
They finally got the seizures to stop with IV meds he is also in IV meds for the pneumonia the tube is still in we hope to be home in a few days.
September update
The kids all started school. Eoghan and Maura walk around the corner and Finnian and his nurse take a yellow school bus to school.
Eoghan is doing good in school and Maura is doing good too. But our Finnian is learning to ride a tricycle and walk with a walker.
Look in our pictures and you will see pics of the kids on their first day at school.
Eoghan is doing good in school and Maura is doing good too. But our Finnian is learning to ride a tricycle and walk with a walker.
Look in our pictures and you will see pics of the kids on their first day at school.
New Baby in Holland
Congrats to Brendan and Caroline in Holland
on the birth of their son
Ronan Finn Cosgrove.
Congrats to Lisa and Bridget too on the arrival of their new baby brother
on the birth of their son
Ronan Finn Cosgrove.
Congrats to Lisa and Bridget too on the arrival of their new baby brother
Sunday, August 17, 2008
August
Today is August 17th and its Michael Cosgrove's (Bangor) my big brothers birthday.
Happy Birthday Michael.
Wow the summer is almost over and the kids are getting ready to go back to school. Eoghan will be going in to 3rd grade, Maura will be starting Kindergarten and our Finnian will be starting pre-school.
Finnian starts the 3rd of September,Maura starts the 4th of September and Eoghan starts the 8th of September. Thank goodness they all don't start the same day. Well its a big for both Finny and Maurs. Finny gets to go to school on a school bus with his nurse Bernadette. To be honest it was the only way I was going to let him go to school only if his nurse could go with him. With the way he is now you just don't know when the terrible seizures will hit him. Just to day he had one totally out of the blue and we had to hook him up on his pulse oximeter as his oxygen has a tendency to go low and I got the oxygen ready just incase he would need it. But thankfully he didn't the O2.
We all complain about the list of supplies we have to get the kids for going back to school but its isn't a patch on what I need for Finnian. I have to get prescriptions for his therapy, letters for his medications, letters for his oxygen and pulse oximeter. He will have to travel with feeding pump,suctioning machine,pulse ox,Diastat, oxygen,blood pressure cuff,syringes, etc. All of these things have a place in our house where they live but try to pack everything in to a backpack they don't fit.
Oh well I will have it all figured out by the time he goes to school.
Bye for now
The Cats in the Bronx
Happy Birthday Michael.
Wow the summer is almost over and the kids are getting ready to go back to school. Eoghan will be going in to 3rd grade, Maura will be starting Kindergarten and our Finnian will be starting pre-school.
Finnian starts the 3rd of September,Maura starts the 4th of September and Eoghan starts the 8th of September. Thank goodness they all don't start the same day. Well its a big for both Finny and Maurs. Finny gets to go to school on a school bus with his nurse Bernadette. To be honest it was the only way I was going to let him go to school only if his nurse could go with him. With the way he is now you just don't know when the terrible seizures will hit him. Just to day he had one totally out of the blue and we had to hook him up on his pulse oximeter as his oxygen has a tendency to go low and I got the oxygen ready just incase he would need it. But thankfully he didn't the O2.
We all complain about the list of supplies we have to get the kids for going back to school but its isn't a patch on what I need for Finnian. I have to get prescriptions for his therapy, letters for his medications, letters for his oxygen and pulse oximeter. He will have to travel with feeding pump,suctioning machine,pulse ox,Diastat, oxygen,blood pressure cuff,syringes, etc. All of these things have a place in our house where they live but try to pack everything in to a backpack they don't fit.
Oh well I will have it all figured out by the time he goes to school.
Bye for now
The Cats in the Bronx
Saturday, August 9, 2008
Pictures from our vacation
Well I finally uploaded my pictures. If I didn't send them you can view the by clicking on the link to the right.
That's it for now
That's it for now
Thursday, July 31, 2008
Our vacation in Ireland
We all had a great time in Ireland. All got wind burned on the Aran Islands but we had a great day. Went to Mayo on the weekend and Eoghan learned the hard way why you should hold on while walking on the treadmill.Both Eoghan and Maura were on the treadmill and of coures Eoghan told Maurs to make it go faster and like a good little girl she did and Eoghan flew off it and gave himself a bloody nose. Finnian nearly gave Brendan and Margaret a heart attack when he fell of the bed. All I said to Finny was " did you go boom?" and he started to laugh. It was my fault as I didn't check on him knowing that he was wide awake and having fun kicking and rolling around on the bed. We went to the fun fare in Ballina and to the parade and fireworks after. In between the fun fare and the parade we nearly had to take Finny to the hospital. No it wasn't his seizures he had a little accident with his g-tube button. But lucky for us we had a spare and we changed it in the back of the car. We went to Doohoma and saw Tony,Bridie,young Tony,Vinnie,Martin and Mark. Eoghan and Maurs had fun playing with Rusty. Then we left Mayo and went to Kinnegad and saw Peggy, Pat, Padrigh and Ruaridh and then back to Galway.
In Galway the kids had fun going on the tractors and chasing the cats. They went to the castle and Maura was turning in to a little farmer. Thomas was surprised she wasn't afraid of the cows. Will post pics once I put the on the computer. Iknow I am bad we are back almost a week and still havent taken them out of the camera.
Thats all for now
The Cats in the Bronx
In Galway the kids had fun going on the tractors and chasing the cats. They went to the castle and Maura was turning in to a little farmer. Thomas was surprised she wasn't afraid of the cows. Will post pics once I put the on the computer. Iknow I am bad we are back almost a week and still havent taken them out of the camera.
Thats all for now
The Cats in the Bronx
Sunday, June 29, 2008
Finnian
Our small boy is doing weird things again and the docs are puzzled. We are going in on the 3rd of July for an overhaul and hopefully some answers.
We hope he will be ok for our big trip but if not we will manage. We got his episodes on tape or I should say on our new camera. Now I have to wait until Dee comes down to see how I can store it on the computer.
I have uploaded some pics just click on the link to the right.
Thats it for now
We hope he will be ok for our big trip but if not we will manage. We got his episodes on tape or I should say on our new camera. Now I have to wait until Dee comes down to see how I can store it on the computer.
I have uploaded some pics just click on the link to the right.
Thats it for now
Eoghan
Eoghan has allergies and now we are starting allergy shots we have to still go and see the GI so he can check out his tummy. He ate something he shouldn't and his tummy swelled up and he said his tummy hurt. It's hard to expain to an 8 year old "no you cannot have it". Dairy seems to be one of his bad ones and it is in so much.
Well will give an up date when we go to the GI on the 8th of July
Well will give an up date when we go to the GI on the 8th of July
New Baby
There is a new arrival in the family.
Kayla Rose Seale has arrived.
Proud parents Joanne and Derek Seale and big sister Sarah.
Congrats to all.
Kayla Rose Seale has arrived.
Proud parents Joanne and Derek Seale and big sister Sarah.
Congrats to all.
Monday, June 16, 2008
June's update
Wow May got away on me. The only thing that happened in May was our Eoghan made his First Communion. We had a nice day and a party after in the house.I should have parties all the time my house would always be spotless and everything would be where it belongs.
Good news on Finnian he doesn't have kidney stones but he does have a water works problem. It is a problem with his brain not receiving the signal that his bladder is full or else it is on the return path back to the bladder that the signal gets lost. Down the road we might have to medically help him but for now its ok.
Well poor Eoghan has had a hard time with his tummy and we have discovered he has allergies.The poor lad is allergic to nearly everything but you will never believe what he is not allergic to dust mites,roaches,shrimp,scallops,and some other fish thing.We got an Epi-pen from the doc today and tomorrow we go to see an allergy doctor for more tests. Eoghan is being quite good about having the food allergies he only wants to eat things that won't bother his belly.
Maura has her moving up celebration on Wednesday and then both Eoghan and Maura are finished with school on Friday.
That's all for now
The Cats in the Bronx
Good news on Finnian he doesn't have kidney stones but he does have a water works problem. It is a problem with his brain not receiving the signal that his bladder is full or else it is on the return path back to the bladder that the signal gets lost. Down the road we might have to medically help him but for now its ok.
Well poor Eoghan has had a hard time with his tummy and we have discovered he has allergies.The poor lad is allergic to nearly everything but you will never believe what he is not allergic to dust mites,roaches,shrimp,scallops,and some other fish thing.We got an Epi-pen from the doc today and tomorrow we go to see an allergy doctor for more tests. Eoghan is being quite good about having the food allergies he only wants to eat things that won't bother his belly.
Maura has her moving up celebration on Wednesday and then both Eoghan and Maura are finished with school on Friday.
That's all for now
The Cats in the Bronx
Wednesday, April 9, 2008
April update
Well April is here so I wonder if spring is here to stay? Our news right now is our little man Finnian has put on weight finally. Our boy now weighs 31lbs and is 39 inches tall. If anyone says a bad thing about feeding tube they don't know what they are talking about. Since our lad got his g-tube he has put on 6 lbs and grown 2 inches.
He went to see a new doctor on monday well we call him the "water works Doc" he is a Urologist. The sad part is our little lad might have kidney stones. Can you believe a 3 year old with kidney stones? Doc Terry told us that the stones are usually caused by 1) diet 2)medications 3)insufficent water intake but there are some cases of it being a family trait.Well Finnian has all 4 factors for stones so the next step is he has to have a scan of his kidneys and all his pipes and his bladder to see if he has any. If he has stones we will deal with them and if he doesn't we can mark it of his list of problems.
Well the other two are good Maura has her "moving up" (graduation) in June and our big man Eoghan Will be making his First Holy Communion on the 3rd of May.
That's all the news I have for now
Ger
He went to see a new doctor on monday well we call him the "water works Doc" he is a Urologist. The sad part is our little lad might have kidney stones. Can you believe a 3 year old with kidney stones? Doc Terry told us that the stones are usually caused by 1) diet 2)medications 3)insufficent water intake but there are some cases of it being a family trait.Well Finnian has all 4 factors for stones so the next step is he has to have a scan of his kidneys and all his pipes and his bladder to see if he has any. If he has stones we will deal with them and if he doesn't we can mark it of his list of problems.
Well the other two are good Maura has her "moving up" (graduation) in June and our big man Eoghan Will be making his First Holy Communion on the 3rd of May.
That's all the news I have for now
Ger
Tuesday, March 25, 2008
Hello again
Its been a long time since I have posted. Our wee man had being doing very good but they changed his meds and "here we go agin". We hate seizures but since they are such a big part of our everyday life we just grin and bare it.
On a good note "We are going home for a visit"/ Yup Ireland here we come in July.
We want to thank every one at Make A Wish New York Metro division for making it possible for this trip. Without this we don't know when we would have been able to go home.
We will be arriving on the 14th of July and we haven't made any plans where we will be going. All I can say now is we will be at John Fahy's on the 14th in Galway and we will just have to see how our little man handles being on the plane. I know we have fun when the weather changes forget it when it rains. Seizures man oh man. But we will just have to wait and see how he handles it. Just letting you know we don't go very far from home when he is not himself.
Can you imagin I am already making lists for this trip as our small man has so much stuff that he needs. So I will be like Santy I will be checking my list and checking it twice and making sure that I have everything that our Finny needs.
Thats it for now.
On a good note "We are going home for a visit"/ Yup Ireland here we come in July.
We want to thank every one at Make A Wish New York Metro division for making it possible for this trip. Without this we don't know when we would have been able to go home.
We will be arriving on the 14th of July and we haven't made any plans where we will be going. All I can say now is we will be at John Fahy's on the 14th in Galway and we will just have to see how our little man handles being on the plane. I know we have fun when the weather changes forget it when it rains. Seizures man oh man. But we will just have to wait and see how he handles it. Just letting you know we don't go very far from home when he is not himself.
Can you imagin I am already making lists for this trip as our small man has so much stuff that he needs. So I will be like Santy I will be checking my list and checking it twice and making sure that I have everything that our Finny needs.
Thats it for now.
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