Its been 1 year since we started the Keto diet with Finnian. We didn't get the out come we hoped for seizure free and no meds, but we are almost seizure free with meds on the diet. His quality of life has improved as his number, severity and duration of seizures has decreased.
What is the Keto diet? Well the diet consits high amounts of fats controlled amounts of proteins and carbohydrates. Finnian takes his concoction via g-tube and w just call it his formula. We still try and make him eat by mouth but he doesn't consume enough to take away one of his feeds.
Our formula is made up of RCF fromula soy based, micro-lipids, water and polycose powder. They say if your child can take the Ketogenic formula it is better but our Finnian has a problem with dairy products. So we use the other mixture.
He is due for another calorie increase due to his growth. Right now he is on 1160 calories a day you might not think it is a lot but the majority of it comes from the fats.
Do I agree with the diet? Yes I do one year ago I had an almost 3 year old that was just there now I have an almost 4 year old that can sit up on his own for almost 3 minutes. That was a huge achivement for him.
I hope we can keep him on this for a while so we can improve his quality of life.
1 comment:
I have thought about putting Jude on the formula. Do you need a prescrip? Where do you get it?
Post a Comment