Sorry son I am late writing this note to you this year. The 9th of Dec has come and gone. Wow its been 6 years Finnian since I found out that you would have a different journey in life. I guess there was a lot on my mind with you being sick and all the doctors appointments you have had. This year again has been a year of new things. You got you hips fixed, new ear tube put in and the tonsils out. Now you are having issues with your O2 and your heart rate. So we are trying to find out why? we probably won't like the answers but hopefully we will be able to move forward in the treatment of your symptoms.
We still have 2 big appointments left for this year. We go to the cardiologist to see if she can make head or tail of your heart rate or will it be written off to being neurological. Then the end of the month we see GI. I hate to tell you but you have to have another surgery and we will have to see when GI can do it. At the same time we hope they can do the muscle biopsy so it will cut down on the amount of times you will be put under anesthesia. Oh well we will get through it.
Just know son we love you for you not what we hoped you would be because you are our Finnian the way God wanted you to be.
Love Mammy
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