I am a wife and mother to 3 beautiful children. Eoghan my oldest has Eosinophilic Eosghagitis,Maura my girl talks too much and Finnian my youngest who battles the seizure monster everyday as well as his other disabilities
Our Finnian was diagnosed with an enlarged ventricle in utero which was cause by a stroke. He also has many other diagnoses, Microcephaly, cateracts(removed), GERD, developmental delay, FTT now has G-tube, Infantile Spasms (seizure disorder), Generalized Epilepsy, undiagnosed movement disorder, asthma, cortical visiual impairment with optic nerve atophy,microphalmia(small eye), nystagmus, amblyopia, legally blind, neurological bladder, small corpus collosum and other brain issues. Even with all of his problems he can say a few words, can sometimes sit unsupported even though its only for a few minutes but the best is when he smiles .
Phenobarbaital Vigabatrin still on Topomax Keppra still on Zonegran Trileptal Lamictal Keto Diet still on Klonopin still on B-6 still on Lecuvorin still on Banzel just started
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