June 2014

Wow time seems to be going by so fast. School is almost over for the kids Eoghan will have his Graduation on June 13th and then its off to High school in September. He had his 8th Grade dance on Thursday night and he looked very handsome It seems just like yesterday he was putting on his St. Brendan uniform for the first time and heading off to kindergarten.

We have added a new rescue med to Finnian's list of medications. Midazolam (Versed) nasal spray which works fast but it doesn't stay in their system very long 2-3 hours. His seizure clusters have been lasting long even with swiping his VNS, giving a dose of Klonopin and sometimes well nearly all the time giving a dose of rectal Diastat. He usually ends up on oxygen for a while as the Benzodiazepines affect his respiratory system especially when he gets 2 doses of them in a short time. So keep your fingers crossed that one dose of this new benzo with stop his seizure clusters.
We took a trip up to Tuxedo, New York to a Spartan Race. The kids ran at the Spartan Race in Citi Field and Maurs wanted to do one where she would get wet and dirty so off on a road trip we went. She had a great time and said it was much tougher than the one at Citi Field. Here are some pictures of Maurs in action

While Maurs was on the kids course myself and Finnian were checking out the big boys and gals course and I happened to see Steve-o. We met Steve at the Spartan Race in Citi Field and he carried Finnian in the kids race. Steve also is the reason that Finn-man has his new special needs jogger if not for him and his fine bunch of guys and gals we would be still squishing Finny in to the baby jogger. I also cannot forget to thank my family and friends who helped too. Well the next thing I know I agreed to let Steve and his crew go off with Finnian I know can you believe it? I had to get Maurs as she was on her second lap of her race so off I went to get her and then we went off  to meet Finnian. They took Finnian on part of the kids course and thanks to Josh Gibney and Spartan we have these brilliant pictures

Thanks to Melinda for these pictures too

Then they came around to where Maurs and I were and they took him on the real Spartan course with them. Wow! They even had Finnian do some of the obstacles with a lot of help but between them they did it. I think the pictures will say so much more that I could so here are some pictures

Everyone crosses the finish line as a team. Thanks everyone for giving Finn-man the adventure of a life time. Thanks Steve-o, Earl, Greg, Henry, Terence, Kayla, Melandie, Laura and the Spartan crew and volunteers.
I know people want to know why I let Finnian do things like this but take away the wheelchair and his disabilities he is still a 9 year old boy and boys and girls like to do stuff like this so why can't he when you get a group of people like these who are willing to help a little boy be just like any other little boy.