A new post finally

I have sat down and written so many and never posted them all because I never finished writing them but I am not getting up unless Finnian pages me until I update here. Aug 5th at 5:10pm get call from billing office in hospital confirming insurance info and found out he was having his surgery on Monday Aug 8th for his VNS. Talk about notice I was in a panic as I had not gotten his bloodwork done nor his medical clearence for the surgery. Next thing the nurse for the OR called and went over all Finny's info. I told her we had nothing done and peds office was not opened on Saturday to get medical clearence. She told me not to worry if they wanted it done they could get a peds in the hospital to clear him and there was plenty of time to get the blood work done in the hospital the morning of surgery.

Sunday morning we got the devastating news that little Joseph Knight had gotten his Angel wings. This beautiful 19 mth old little boy fought his battle against the SEIZURE monster and lost.

Sunday night/Monday morning I didn't get much sleep next thing we were in the van going off to the hospital. No problems with medical clearence then I took him down to the OR and left my little man in the hands of the OR crew once he was asleep. They kept him overnight and put him in to the ICU where they could keep a better eye on him just incase of seizures. Got discharged and came home. He was a bit sore and cranky and then he decided he wouldn't pee. So Wednesday night I took him to the ER as I couldn't get any pee out with the catather at home. True to Finnian form he peed when the ER doc was checking him out. We had a repeat of non peeing and not been able to get the catather in on Friday so I decided to wait it out and if he had not peed my morning we would go back to the ER. I got up on Saturday morning no pee so hopped in to the shower when I got out I went and checked and as soon as I walked in to the room you could smell pee so we avoided a trip to the ER.

We got his VNS turned on and of course that evening our Finnian decided he need to try his VNS out. He had a tonic seizure and the first thing we tried was the VNS well it worked. I will tell you my knees were knocking as I swiped the magnet and then watched and waited. Just to be safe I had Joe get the Diastat but we didn't need the diastat. We have appointments set up next week for out Finn man to get his water works department checked out, follow up with his GI and we have to go back to the Neuro to get his VNS checked out.

Joe, Eoghan and Maurs are off to SC for a few days to see the grand parents. Eoghan just came back on Wednesday from Ireland. He loved it and is making plans that he will not have to go to summer school next year so he can spend all of his summer vacation over there in Ireland.

Our nurse changed her vacation so she will be with us to go to Finnians appointments next week she also didn't like leaving me on my own 24/7 for 5 days. My best laid plans for next week are shot with Finnian's appointments but I do hope to get in some beach time weather permitting. Tuesday is the best looking day as his appointment is an early one so may be the beach or may be a trip out to Ikea well we will see.