We went back to the rehab doc for a follow up after the botox shots. She was very impressed with the job it had done on his ankles, left arm and hand and on his right hamstring. His left hamstring will need the release surgery but by doing the botox its not something we have to have done right away we can wait for another while. We scheduled another appointment to have another round of botox done in June. Our hopes for the next round is to keep what he has gained and maybe even to get a bit more of a release out of his left hamstring. The reason his left side is much tighter is because of the stroke he had before he was born. You know we never thought we would ever see him use his left hand but since the shots his hand is opened and he is moving his fingers independently and his thumb is not constantly in against the palm of his hand. Honestly when we decided to try the botox we were hoping to just put off the tendon release surgery on his hamstrings and ankles but never did we think he would only need 1 surgery instead of basically 4 surgeries.
We are still going to be going to the movement disorder doc for his dystonia even though botox is a treatment for dystonia we are really using the botox for his CP spasticity. He is on a medication for his dystonia and that is helping that issue.
Just waiting to hear when his new cool wheelchair will be in we really don't expect to hear anything until the end of April hopefully we will have enough movement in his legs that they will justify his need for a gait trainer other wise we will just have to get another stander as he is growing out of the one he has.
Wish I was able to afford to get a soup to nuts gait trainer for him. Oh well I am thankful everything he has been able to get but would love to help him gain more independence with a gait trainer.
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