We have been plodding along basically the same ole same ole going on. Took Finnian to the wheelchair clinic to see about getting him a gait trainer (soup to nuts walker) and to see about getting him a real wheelchair. Right now he has a stroller/wheelchair and its time for an upgrade. You know these thing cost a fortune thankfully we do have insurance. So we go back in January to get him fitted for both items.
Eoghan and Maurs got their progress reports and both are doing very good.
Took pictures of the kids in front of our Christmas tree for the Christmas cards what a laugh. Finnian the pup wouldn't look towards me at all. So I uploaded the pics and ordered the cards. So me and little man were hanging out and he was in fine form so I started taking pics of him at 1:30am in front of the tree and you know I got some great shots of him. Yes he is a bit of a night owl but its our time together.
This past weekend he was having some issues with low heart rates the weekend before he had a high HR and a high temperature. Now for the past few nights his O2 keeps dropping but only when he is asleep.
He did great with his PT today and was even moving his leg to take steps. This is a huge development for him.
On another note I have been diagnosed with the same digestive disorder that Eoghan has. Had the food allergy tests done and I have allergies to soy, nuts, peas and buckwheat. Some others were itchy but didn't swell like the other 4. I am a genetic carrier for cealic disorder so have been advised to go gluten free. Have you ever read the labels on the packaged foods? Soy is like nearly in everything. Had some regular pasta the other night and its so not worth it. Will have to start buying gluten free products
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