Neuro appointment

Well the news we got today was so so. The information they got back from his stay in the hospital in September is he not a canadiate for the surgery they first had in mind but he is still a canadiate for surgery. The big seizures he has been having are comming from a different part of the brain well they are comming from the left side and they will keep affecting his swallowing ability if they are not controlled. The rest of his seizures are comming from the right side of his brain they too will cause more damage if not controlled. We just have to really wait for the MRI/MRA on friday Nov. 2. But at the same time they are considering to do a muscel biopsy to see if they can rule out any genetic disorders.
Oh well we just have to keep trying all the seizure med until they get answers. Over all he is doing really good he got over his surgery still a little tender but it is soooo much easier to get food in to him well really to get liquids in him. Now I don't have to feel like I am forcing him to drink I can just bypass his mouth and his belly is full.
Bye
The Cats in the Bronx

Maura and Finnian. See his belly no feeding tube

My boys Eoghan and Finnian

G-Tube surgery is over

Well Finnian got a call to come in earlier for his surgery on monday Oct.22. I brought him in to the OR and got to stay with him while they put in his I.V. and they gave him laughing gas that was funny as he laughed himself to sleep. Then not 20 mins later there was his surgen and GI doc telling me that it was all over and that everything went very well and his tummy looked good and they had put in a micro button. The bad news was that we would have to stay over night. Well we stayed in for two nights and got to come home on Wednesday with a whole load of supplies and a a little feeding pump.
THe out come is for now he will still eat by mouth anything he will eat and drink but we have to give him an over night feed through the pump. They want him to gain 3 to 5 pounds over the next few months. When his seizures are bad now I won't have to panic because he cannot eat or take his meds I will be able to feed him and give him his meds through the pump.
The next appointment he has is on monday with his seizure doc we will just have to wait and see what she has to say.
Bye

October News

Well the great news is Finnian has perfect hearing. He passed the hearing test thank goodness.
Now the next big one is on Wednesday October 17th the is having his surgery to put in a feeding tube. We hope this goes well and he will come home on the same day.
We are still waiting to have one other test done to see if he can have the epilepsy surgery done. Once we get his MRI/MRA done then his case will be off to the surgical team.

Happy Birthday to all who have birthdays this month.

Will update after the surgery

Bye The Cats in the Bronx