Friday, October 1, 2010

Something is off

For over a week our Finnian has been doing this chewing, tounge clicking with his eyes turning to the left. It started out that he would do it maybe 2-3 times a day but you would have to watch out as if he was getting fed when he had one of these "spells" he would throw up.All we were doing was making note of these "spells". I had called the doctors office as we need a script for one of his meds and had told them that he was having these new "things".
Well last night he threw up while asleep and stayed asleep while I cleaned him up. About an hour later he started crying while asleep and nothing I did calmed him down that lasted about 2 mins but seemed longer. About 20 mins later he woke up and started the tounge clicking but he went back to sleep again. I told his murse all about the night and she was watching him and said call them again and that she would also speak to the doctors office and tell them what she was noticing about Finnian. So the end result of the conversation was she was going to speak wth the docotr and we had to get intouch with the movement disorder people to let them know what was going on with Finnian and to see what they thought. Dr. H said its not a side affect of the med he is on for movement but she would talk to Finnian's neuro. She was thinging along the same as us seizures.
Look I know he will never be seizure free for extended periods of time and any day we don't see a seizure if a "bloody fantastic" day. I am not a parnoid mother that screams seizure with ever little twitch, jerk that he makes. I am a watch and wait and see type of person. But I hate to see him having these "spells" and then sleeping more hours than he is awake and then there is also the issue of him throwing up if he is being fed while he has one of these "spells". The safest time to feed him is when he is asleep but it doesn't always work sometimes he will throw up after he wakes up if he has a long spell. We just have to wait now and see what they are going to do with him change his meds or bring him in and see if these are really seizures.

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