Well I was right he can do with a shorter button and we are going to try an AMT mini one. IT is Mic-key extension set compatitable. The nurse said alot of people have been complaining about the ballons on the type we are using. So we will give the new one a shot and see what happens. I told her that if we were having trouble with granulation issues there wouldn't be a problem with us switching back aand the answer was no problem.
So she is putting in the order for the new button with a second one for back up and extension sets. We don't have to change his button until we either have a problem with the balloon or its time to put in a new one. These new buttons are a much flatter and they lay closer to the skin so it hopefully will be alot easier on him when he lies on his belly. They also have a longer life so it means they should not have to be changed as often. We were changing his every 2 mths but we were told with the new one it could last up to six mths.
So we will see
Hi Lori and thanks for seeing us on such short notice
2 comments:
Caleigh...at Caliegh's Corner...has a Mini. Her mom really likes it. AND..today she changed it by herself too (she offered to wait until I was there to watch, but of course I declined. I know she really likes it. We have the same surgeon and asked him about it, but he said we needed to start out with a microvasive.
We started out with that one and my hubby was very upset when they removed the spacer on it to give him more room. Then we went to the mini wich was fine but we had granulation issues then in Ireland we switched to the Mc-key and that was fine until now. I don't know why but the balloons don't seem to last like they used to. So now we are going to try the mini one. They are so easy to change it doesn't take 5 minutes. I think its harder on us that we have to do it they do feel some discomfort but its over and done in minutes. I made sure Finny was alseep the first time I did it so he wouldn't move but now it doesn't make a difference.
Hang in there it gets easier.
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