Well Eoghan had to go back and see the GI doc today. He was very happy with his weight and his height. Upon checking out (feeling ) around his tummy he said " Someone isn't take his meds all the time" Eoghan got that sly look in his face and didn't say anything. He has to go for another GI scope with biopsy to check to see how is Eosinophilic levels are in his tummy. So Deb will call and let us know when .
He was saying that there are so many children being diagnosed with EE. He now has a few patients with it and even had a patient coming in for a second opinion about the diagnoses. He was saying its harder on the older kids and it also effects them emotionally. Well hey if you have been eating bread for 9 years and all of a sudden you are told all you can have is the special formula and basically lettuce, cucumbers, carrots and ice its hard. He said depending on the how high the levels of the eosinophillic cells are is how he bases his form of therapy. With Eoghan we got the food allergy tests done once he tested positive and started him on prevacid and flovent. Once we got the results of the food allergies we had to take away anything higher than a 2 and that was alot. BUt just by doing that it made a huge improvment. Believe me you learn very quickly to scan through the ingredients on all foods. It is really an eye opener as to how many things have soy in them nearly everything.But we are doing it and for us it is working.
Some children aren't as lucky and can only take the formula and have dum dum
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