Well the weather has been crappy and we thought that our Finnian was doing pretty good no seizures. Well the bubble bust and this evening he had one of his shouts watched the time and it was over in less than a minute. No intervention his blood pressure was good, his breathing good and no drop in O2. So all we could do is wait and see when the next one would happen. Its usually goes 6 hours before the next one, no intervention the next on e after in 3hours thats usually when we give the diastat but tonight he did a Finnian. The second one came 2hours 56 minutes after the first one. We didn't waste any time we just gave the diastat. I was just falling asleep when Joe shouted he is doing it again all I said back give him the diastat. Now we just have to wait and see if the 5mg of diastat will stop these nasty buggers. We have found out that we have to give him the 7.5mg of diastat if he has an Infantile spasm cluster because the 5mg only slows the seizure down and there is nothing worse than watching your child spasm over and over until it stops. The hardest part is he will either be so tights or he will be like a wet noodle. If he pulls a Finnian he will be tight tomorrow. Oh pharmacy hurry up and get the new med in I know the manufactor of the diastat loves us but I hate shoving the crap in to him.
So now I wait to see if we have another seizure
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