Whats new today

Well the sun came out and melted some of the snow and ice away just in time for the next storm that is supposed to come in over the weekend. They are also saying that there will be another storm sometime during the week. Watch it will probably dump on Wednesday never fails when we have something to do with Finnian.

I know some are asking why at this stage are we going through with a muscle biopsy we should be just happy with the way he is. Well we are happy with him and love him for who he is but like anyone he is entitled to the best quality of life. We might get answers and then again we might not. Some think that not knowing is better well that might be but if taking a pill or a shot will halt the progression of what he has then I am all for it.

You know he isn't "poor Finnian" the child with this,that and the other. He is Finnian the child brings smiles to our faces and makes his Mammy proud when he accomplishes the simplest of tasks. He is the child that from before he was born had baffled doctors with things he can do because he shouldn't be able to do them. He's the child that dislodged a breathing tube while he was supposed to be sedated and he got rolled out of ICU with out a trachea when they said it was the only way he would ever go home was with one.

You know its not easy when you know that your child might go to bed and not wake up, he might crash with seizures and everything I or the doctors do might not be enough but the best thing about our Finnian is he is the most lovable, interesting, smarter than we give him credit for and most of all he is My Son.