Since the increase in Keppra we have seen an increase in his seizures and again we have the "shout" seizures. Coincidence? no its something I have noticed in the past but you know you are always hoping that its not true.
Well all the paper work is gone in for the skin and muscle biopsies so now we are just waiting for the date. The reason they are putting him forward for these now is to rule out a metabolic condition. You might be wondering why now? Well now since he has oxygen issues, heart rate issues they think maybe something in the metabolic area. May be it is but then again may be it isn't. I will wait for the results to see if anything popped up but you know I won't be counting down the days for the results as sometimes the ignorances of the not knowing is the best.
2 comments:
Are you suspecting mito?
We are battling non stop seizure days...it sucks and I am sick of it and so sorry to hear your seeing endless seizures too...
hugs
Debbie,
Like everything with Finnian they don't know. They know he presents differently with some seizures than the norm. Now we have O2 issues and also heart rate issues which mito kids can have. SO they want to check it out. He does have cerebral atrophy but what is causing it? So far everything they have checked him for has come back normal. Today has been horrible with seizures I even =gave him diastat and he is still going. Fingers crossed they will stop otherwise we will have to go to the ER and I know they will put him to ICU.
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