We went the other day and had Finnian blood levels checked out. So I got the results today and everything is in the normal ranges. His ALT levels have increased why we don't know but at least now he is getting up to normal levels.
We have started to decrease his Vigabatrine (Sabril) and so far so good nothing has popped up. This is one of the meds I am nervous to decrease but hopefully he has truely out grown the Infantile Spasms. Its 4 yeas and 8mths since he started on the Sabril, this is the one med he has been on the longest. We were lucky that it did work on the spasms and in many ways it gave him back to us. Now if we could just get better control over the other seizures that he has that would be great.
His ear infection is so much better and he now can roll to the right. THat is something he has not been able to do on his own in a very long time I think almost 2 years. Something else he is now doing is dropping his toys over the side of his bed on to the floor thats a first. Hopefully we will continue to see more "first" from him.
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