Well today we had our follow up visit since he was in the hospital. Got copies of his MRI report and a copy of his EMU addmission so I have a lot of reading to do and some things to check out. The base of the report there aren't any main changes in his new MRI reoprt. The usual about his Corpus Callosum is atropic, Microcephaly is noted, bilateral volume loss with the right being greater. The one thing noted thickned fluid in his sinuses the poor child no wonder he is always rubbing his head it hurts.
Hopefully with the removal of the tonsils and placement of the bilateral grommets it will open up the normal drainage of the sinuses.
the good news is we got the go ahead to reduce down his keppra even more. Since the first reduction of 125mg TID we have seen an improvment may be the Banzel is working the way it should who knows. Is it the answer for our Finnian? Well right now it seems to be.
He had been kind of off the last few days but then again we can put it off to the change in tempature. But at the same time he seems to be enjoying standing up and is doing great in pushing up on his hands.
Maura is saying her head hurts i guess her sinuses are acting up too. She has been looking a bit washed out yesterday and today. Well at least its the weekend now so we will see what happens
No comments:
Post a Comment