THe up coming appointments

I am getting a bit antsy with the up coming appointments and I don't know why. Its not like me to be like this. I have of course been looking up Finnian's symptoms and have come across a few things to ask at our next appointment the genetic appointment. For a while they were putting all of Finnian's issues on his stroke but they could never explain why he had cataracts. Every test that would say the reason he had cataracts came back normal. So that was always a mystery but his other issues were always said to be from the stroke. But over time one of his doctors said there is something else going on with him and then that's when we started looking for the answers to Finnian. May be we will get an answer and get told yes your son has .......... But you know it won't change Finnian it will just give us a better understanding of his condition. People have asked do you know what his life expectancy is? Well the answer is since we don't have a diagnoses on what his true "syndrome" is we don't know but because he is a bad epileptic he is at higher risk of SUDEP. So ever day we have with him even the bad ones is more time we get to spent with him. So maybe not having "name" for whats wrong with him is a blessing in disguise.