Testing

We went to see a Genetic doctor. She wanted to go over all his blood work, Cat scans, MRI's, PET scan, EEG's to see if there was something like an underlying condition that our Finnian might have.
When we saw her again the end of December she was able to tell us that the stroke that Finnian had in-utero was not the cause of all his problems. She ordered some blood work we have gotten some results but one we are still waiting for. Some things were not normal so we have to go for another test. She wants him to have a Lumbar puncture also known as a spinal tap. The problem was to get a lab to do a certain test we nearly had to send his CSF to Europe to have this test done. They will also do the regular CSF testing to see if something will show.
It would be great to have a name for what he has well at least we will be able to go in the right direction for his treatment.
His seizures are funny again so when we saw his Neuro doc on thursday she increased his Keppra again. Keppra has been good but now he seems to be taking mega doses I don't know. We know he may never be seizure free but its the grand mal seizures we could do without.
Will update on the testing when all the results are in.