Thursday, July 30, 2009

You will not believe what Eoghan did today!!!!!

I was doing laundry and Eoghan asked Bonnie ( Finnian's nurse) what happens when you swallow a quater?Bonnie was in the middle of doing something with Finnian and said to Eoghan " What did you do, did you swallow a quater?" And he said "YES""DOes your mother know?" No I just walked in and Bonnie said Eoghan swallowed a quater. Not believing them at first yeah right he swallowed a quater. He told me when he swallowed it then 50 questions come out is it stuck? are you sure it was a quater?what possesed you to put dirty germy money in your mouth? you get the picture?
First I call the nursing service we have through our insurance they told me to get in contact with the Peds office, So I called the peds and told Paul what Eoghan did and what should I do he put me on hold and came back " Geraldine you said it was Eoghan not Finnian? Yup thats right so he put me on hold and came right back " they said to take him to the ER. So off to the Er we go they all smile when I say he swallowed a quater. He had 8 x-rays done and yes he did swallow a quater I saw it on the x-rays. The reason he had so many they wanted to make sure it was making its way out of his stomach. So we got sent home with instructions to check for the quater for the next few days. If it doesn't pass in 3 days go back to the peds office. if he starts to vomit and has bad pain take him back to the ER. SO I told Eoghan if I catch anything in his mouth other than the food I give him he knows what will happen.
SO that was the great excitment for today

I think I know whats been causing the vomiting

Well our boy has been vomiting off and on and I think its due to the heat and his delayed gastric emptying. I adjusted his flow rate on his pump and decreased the amoount of formula we were giving him and so far so good no puking, The only bummer is he seems to be on his feeds all the time now. But I will take that over sour milk comming out his mouth and nose. My biggeest fear was he has been puking in his sleep and I was so afraid of aspiration so I wasn't really sleeping everytime I heard that "cough" I was up in a flash. Now I feel like crap I guess I am just over tired and also my sinuses are acting up and my voice is getting a bit funky due to a post nasel drip. The kids love when my voice is gone so maybe I will take a trip to the docs office if its not better by Friday. I do not need to get broncitis during the summer had it one year and it almost took 4 weeks to clear up. Two rounds of antibotics and a course of steriods and daily asthma meds. As usual I will take the wait and see route.
Well tomorrow Finnian goes to see the ENT and we will see what he has to say about the ears.

Sunday, July 26, 2009

We had a few days of no projectile vomiting and yet again he started last night. The poor little lad it just shoots out his mouth and nose his heart races and I don't blame him he seems to get upset. He was talking away in his own gibber last night and then he made that little cough and next thing it was everywhere. All I can say is thankfully I can strip my couch because all the covers went in the washing machine today. Of course while I was doing laundry he spewed all over his bed. He had eaten almost 2 hours before and he was tired sitting up and it was time for a nap. So we did do everything by the book but yet the doc said unless he is throwing up after every meal not to worry. But as soon as he is finished he back to normal right away so I don't know. All I can say is I am doing alot of laundry.

Wednesday, July 22, 2009

So many appointments today

Well to day Finnian played hooky from school as he had many appointments today. Eoghan and Maura were a bit bummed as today was the last day of swim class and they were having a party, but a big fat pretzel and a hotdog from the cart outside the hospital fixed that.
First appointment was blood work and we found out that they don't check his blood for Banzel at the hospital but they did all the other blood work on him.
Second appointment X-rays of his hips and spine we got Matthew again which was great.
Third appointment ortho with Dr.H and from Finnians x-rays if he was high toned he would be having surgery right away to fix his hip but because he is low toned in his hip area the doc would like to wait until he is 5 to do the surgery so when we go back in January if his x-rays are still the same he will be having the surgery. It was something we knew that he might have to have done since his first appointment with Dr.H and that was 2 years ago.
Fourth appointment was with his nutritionist to get his calories increased on his keto diet not bad he is 34.5 lbs and 41 inches.
The fifth and final thing was we had to drop off some stuff at the neuro's office and ask for some refills on scripts and to tell them that the lab doesn't check the Banzel level. We also made our appointment for September.
So needless to say we had a busy day. We have to go early again tomorrow to see if we can get Eoghan and Maura signed up for swimming. THey really want to do it and it is free at the city pool so why not .

Monday, July 20, 2009

Shoes

Back view
Side view

Don't they look cute


Well our Finnian is very hard to fit in shoes with his "legs" braces. Oh yea just go up a size or two but it is hard when 1; he has a wide foot, 2; he is very high arched by the time I am finished he looks like he as 2 fishing boats on his feet. His feet do not match his body by the time I am finished getting shoes that fit over his" legs". I have tried the shoes for the braces but when you are dealing with a child with low tone who wears braces by the time you are finished he is carrying almost 2 lbs on his feet and that is not good. The answer Crocs they weigh almost nothing and with the back strap the will stay on adn if I may say so he looks quite spiffy and normal. How many kids wear Crocs? Well so does my Finnian they don't need the support because the braces give them the support they need the Crocs are just foot covers to protect the braces. Now I just bought a spin off pair to see how they would work to be honest I paid $5.99 in CVS for a pair but they only had them in Navy I am fond of colours so I will be on the look out for something a little more summery.
So if your tot is not walking but you want footwear for over there braces try a pair of Crocs or like me a spin off pair. There will be more notice taken of the shoes than the braces.
I will now get off my soap box.

Sunday, July 19, 2009

Sunday

Maura, Daddy(Joe), Finnian and Eoghan
Beautiful clouds and there was like a rainbow in the them

Finnian chillin






Well we braved the beach again today with Daddy. We got there much earlier thatn we did the last time. It was great so by the time we were leaving it was getting very busy. So on the way home we took a detour and went and bought a beach umbrella. It will provide much more coverage for our boy Finnian. Must ask Nanny if she will pick up another brolly for our buggy. I went to two baby stores to see if I could get one but a lass no couldn't one. So Nanny can pop in to one of the baby shops in Galway and get one for me. To be honest I like the baby brolly for his chair it has more adjustability than the stroller canopy.More pics form the beach today. Also so far so good no projectile vomitting today. I just reduced down the flow rate cbut now it seems he is constantly on a feed. Its better than vomitting.

Saturday, July 18, 2009

Happy Birthday Sean


Its my little cousins birthday today. Happy 20th Birthday Sean.Sad to say but every picture I have of Sean is on a tractor. Here he is putting Eoghans seatbelt on.