Merry Christmas

Hope Santa was good to everyone? Well he came to our house and Eoghan came creeping out just around 5:30am Then Maura showed up around 6:20am. Finnian was the one to sleep in and he didn't wake up until about 9ish I think. I got very little sleep that night as Finny's alarm was going off it seemed like every 15-20 mins all night with low heart rates.
Maura got a puppy but its not a real puppy. Its a cute little thing he came with a bed, a brush and his chest moves up and down like he is breathing. He is a golden retreiver puppy and Max is his name.She also got a watch and a basketball.
Eoghan got some games for his x-box and gift cards to get more. He wanted West Side Story DVD couldn't find it anywhere so I got it on itunes for him but having issues getting it to go on to a disk for him to play it in the DVD player so I guess he will just have to watch it on the computer until I get it sorted out.
Finnian got an Uggly doll, a sock monkey, a puppy blanket and a razzberry teether. He really likes his sock monkey. They also got clothes.
Dinner was over at Mam's and there were more prezzies to open. Deirdre got me oven mits well on Thanksgiving she was taking something out of the oven with mine and I forgot to tell her about the hole and she got a blister so she said she would get me ones for Christmas and she did. Maurs got a nice jacket and boots from Nanny and the boy got some clothes. We still have to do some shopping for them.
We had great plans for last Friday but we had issues with our van and were out of commission. So I dropped the van off at the garage to get fixed its supposed to be ready later today. We just have to get a hose replaced as we are leaking coolant. We were lucky as we could have really messed up the van good job I noticed that the temp was higher than what it normally is and I added coolant. Can't wait to get the van back in running order as we had planned on going to the beach to the basketball courts and the park over there. We are also going to go to the gardens as the Holiday Train show is on. We haven't been there much this past year we had so much going on with Finnian and his surgries and the change in his seizures we were sticking close to home with him.

Christmas Pictures

Eoghan decorating the tree

Putting the decorations on the tree

Happy boy Finny

At least they are all looking in the same direction

Finny is hiding in his santy hat

Eoghan and Maurs

Eoghan and Finny

Maurs and Finny

Let me think about that

Fake smile

Strike a pose

Smilie boy

See I am looking at you and smiling

Playing shy

Cheeky Finny

Hang on getting comfy

Relaxing with my leg up

Update finally

We have been plodding along basically the same ole same ole going on. Took Finnian to the wheelchair clinic to see about getting him a gait trainer (soup to nuts walker) and to see about getting him a real wheelchair. Right now he has a stroller/wheelchair and its time for an upgrade. You know these thing cost a fortune thankfully we do have insurance. So we go back in January to get him fitted for both items.
Eoghan and Maurs got their progress reports and both are doing very good.
Took pictures of the kids in front of our Christmas tree for the Christmas cards what a laugh. Finnian the pup wouldn't look towards me at all. So I uploaded the pics and ordered the cards. So me and little man were hanging out and he was in fine form so I started taking pics of him at 1:30am in front of the tree and you know I got some great shots of him. Yes he is a bit of a night owl but its our time together.
This past weekend he was having some issues with low heart rates the weekend before he had a high HR and a high temperature. Now for the past few nights his O2 keeps dropping but only when he is asleep.
He did great with his PT today and was even moving his leg to take steps. This is a huge development for him.

On another note I have been diagnosed with the same digestive disorder that Eoghan has. Had the food allergy tests done and I have allergies to soy, nuts, peas and buckwheat. Some others were itchy but didn't swell like the other 4. I am a genetic carrier for cealic disorder so have been advised to go gluten free. Have you ever read the labels on the packaged foods? Soy is like nearly in everything. Had some regular pasta the other night and its so not worth it. Will have to start buying gluten free products

The part came in for my computer and thanks to Rick and Dee its not going to cost an arm and a leg to fix.